Diabetes information and services in Europe
Developed under the auspices of the Chrodis Project
MyDiabet.es is a Pilot Research Project
Overview by the European Institute of Women’s Health
Accessible, easy to understand and accurate health literacy is a valuable tool to empower patients, caregivers, and their families as well as to provide core information for healthcare professionals.
Health literate information increases the potential for providing information on health conditions and medical needs to patients, caregivers and their families.
Patients trust information they received from their healthcare provider. Healthcare professionals can use health literacy information to help educate and manage their patients’ health and to reduce or even avoid potentially adverse outcomes.
The information can act as a reminder—e.g. medication compliance—and can support information given during a consultation. In the future model providers will also be able to easily adjust the information to meet individual patient needs so adding immediate value to the process.
Pilot Research Project
MyDiabet.es is a Pilot Research Project which aims to examine the need for the provision of accessible, easy-to-understand and accurate health information on medical conditions. Diabetes has been selected as the case study for the Pilot Research Project in line with the JA-CHRODIS objectives.
Diabetes is the fourth most common cause of death in Europe, affecting 32 million EU adults in 2013. Diabetes information is used in this pilot to assess the need and possible benefits from appropriate health literate information that is designed from the beginning to potentially meet the many and varying needs of individual health consumers to support the work of the many health professionals who are directly involved in helping patients improve their health opportunities or to better manage their health outcomes.
Throughout 2016, the MyDiabet.es Pilot Research Project has conducted an extensive review of the available information on diabetes.
The research also examined current methods used and tools available to various healthcare professionals and other stakeholders who interact with patients to prevent, manage and control their diabetes. The Project has identified existing challenges, gaps and opportunities for improvement with regard to health information.
The MyDiabet.es Pilot Research Project has developed a core pilot information strategy for implementation that aims to provide accessible, easy to read, while supporting healthcare professionals and patients’ informational needs. The approach is designed to help increase health literacy
Basic health literacy information has been compiled from the existing knowledge base and written in accessible language.
The Pilot serves as a needs assessment to determine if there is a demand for this tool with trusted information.
The prototype of the MyDiabet.es website is available online in English. A survey has been created on Survey Monkey. The prototype will be reviewed by two groups of experts
1) participants from the JA-CHRODIS project and
2) healthcare professionals in the EU.
The experts will be asked to assess the need for this type of tool and information. They also will rate the prototype, including the existing topics and information. They are asked to evaluate the prototype, identify gaps and make suggestions for improvements. User feedback is vital in order to determine and to meet the health information needs of patients, healthcare professionals and other stakeholders.
This site is currently undergoing testing by representatives from the health professions who deal directly with patients and require to give them information and guidance in avoiding, managing and living with chronic diseases.
It is also being used by patients to help identify the complete range of information and assistance that they require to deal with all aspects of a chronic disease and how they and their families can best benefit from such resources.
If you are a health professional who deals with patients on a regular basis and would like to participate in the survey, please send an email with your contact details to: firstname.lastname@example.org